Day 26 – Pain Control

Calibration of pain experienced by a patient is not an exact science. The doctors ask you to choose a number between 1 and 10 (10 being the worst) and then they try out a few options to see what works for you. Rachana’s ANC has jumped to 300, which is awesome news and I can clearly see her mouth ulcers healing, but she is experiencing increased pain. So what gives? Well, about 2 days ago when Rachana was complaining about the blurry eyes issue which was exacerbated by her being dizzy all the time, the doctors switched pain medications to another non-drowsy formula; looks like this new one is not working as effectively and also Rachana is not taking it often. Last night I was at home with the kids and her mom was with Rachana. The report I got this morning was not sunny. Rachana ate almost nothing, drank almost nothing and was in constant pain all night. She had the usual breakfast, but lunch was a struggle and she gave up after 2 spoons. So after a bit of brouhaha succeeding the five minutes she took to get a sip down her jagged throat, the doctors gave her an oral narcotic and increased the pain medication’s potency she was getting through the IV. That did the trick – she ate the biggest meal she had in the last 2-3 weeks. I kid you not, it was like a new her. By the end of the feast she was laughing that she finished what was in front of her. But by the evening, pain from mouth ulcers was still the issue. She ate a good dinner but with some effort. Overall, she is more active but continues to be disturbed by mouth ulcers.

As you can imagine, the home food being prepared for her is top of line stuff. Everyone is delivering the freshest meal, with the best ingredients, ghee in liberal amounts with nuts and dry fruits whenever it’s remotely possible. All this is surely great for Rachana, but I’m like the friendly hyena, patiently waiting for the lioness to finish her meal. As explained above, the lioness is eating very little and the hyena is surely gonna score a few the next time it’s weight is checked.

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